There is a letter, written by a man that spent his career life studying and researching to find a cure, to create a better quality of life, to explain WHY this happens to some people. Why a disease arrives and takes away muscle function, takes away a person's ability to do things like type the words here, scratch their nose, swallow. While leaving your brain fully functioning.
He lost his mother to ALS and had an emotional attachment to finding a cure and an answer. Then he was diagnosed with ALS and a few days ago he lost his life to this disease, at 39 short years of age. REALLY?!
I will see if I can post his letter here- I need to get it from work. There has not been a day in my almost 6months that I ever wondered WHY I would forever CARE about MDA. But, this letter has started a new fire within me, I have no understanding of why people would NOT WANT to help. There is NO defined RHYME or REASON to why these diseases 'choose' the people that suffer from them, but there are hundreds of researchers and THOUSANDS of people that want study genetics/muscles/etc and want to FUND these researchers.
Stride and Ride funds research, fully. Every penny raised goes straight to RESEARCH and the research is getting CLOSER AND CLOSER to finding answers. MDA funds research without assistance from the government, MDA funds wheelchairs, leg braces, breathing treatments, communication devices, clinics, support groups and summer camp. How amazing is that? I think it is pretty fantastic and I am so THRILLED that this is where I found my way.
I know you all didn't want a rundown of what MDA does, but to really understand why I feel so strongly about Sean's letter and his goals along with MDA's vision it is necessary to have a basic understanding of what this organization is.
This organization is HELP for TODAY, Hope for TOMORROW.
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1 comment:
You have such passion!! I like!!
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